A local business will host a frozen yogurt fundraiser for a 12-year-old boy who has a terminal condition.
Tucker Lanier has Mucopolysaccharidoses, or MPS II. The event that will benefit him, “Froyo for Tucker,” will take place from 2-5 p.m. Saturday at La’ Berry Frozen Yogurt Statesboro, 1100 Brampton Ave., Suite G.
Most children with MPS don't live past their early teens. Tucker is 12, but has the mental capacity of a 1-year-old. He has an enlarged liver and spleen, minor heart problems and is losing his hearing. He has spinal decompression, stunted growth, and his fingers and feet are curling.
MPS is a regression disease, meaning that everything he learns, he will lose. He is losing words, and is in the beginning stages of losing his walking ability. He already no longer has the ability to run.
La’ Berry Statesboro will make a donation and will collect donations from the community to help the Hurst family attend the annual MPS conference in San Antonio. This conference is an annual gathering of families whose children suffer from the various forms of MPS.
The conference brings those families together with some of the leading doctors and scientists who are researching various treatments and procedures that can help improve the quality of life for those suffering from the condition.
The families are given an opportunity to talk with the experts in small groups and one-on-one, as well as talk to each other about their experiences and knowledge.
It is also one of the few times that these MPS families get to experience a sense of normalcy as they will be surrounded by hundreds of families who can relate to them, their lives and their children on a level that most couldn't comprehend.